Latest rare disorders Stories

2014-05-09 08:26:43

WHIPPANY, N.J., May 9, 2014 /PRNewswire/ -- Bayer HealthCare was honored by the National Organization for Rare Disorders (NORD) at their annual "Portraits of Courage" Celebration in Washington, DC on May 8. The event recognized several individuals, foundations and innovator companies that have made substantial contributions to improving the lives of people affected by rare disorders. NORD's celebration of progress is an annual event open to everyone with an interest in rare...

2014-02-24 08:28:17

First Administration to Human Subjects of a New Protein Class, Physiocrines SAN DIEGO, Feb. 24, 2014 /PRNewswire/ -- aTyr Pharma, a rare disease therapeutics enterprise, announced today the first administration of Resokine IV to healthy human volunteers. The study is being conducted in healthy male and female volunteers in the European Union. aTyr plans to develop Resokine IV as a potential therapeutic for rare disorders where a patient's immune system is imbalanced. Resokine belongs...

2011-11-16 07:35:11

Public health officials need to give more attention to needs of people with blood disorders: American Journal of Preventive Medicine supplement Public health should focus not only on reducing the burden of common diseases but also address the needs of people with blood disorders, experts say in a supplement to December's American Journal of Preventive Medicine. Even relatively common blood disorders fly below the public health system's radar with no established mechanisms for...

2011-02-22 10:01:00

CHICAGO, Feb. 22, 2011 /PRNewswire/ -- Siren Interactive, a relationship marketing agency specializing in rare diseases, announces the publication of "Uncommon Challenges; Shared Journeys," a collection of 13 personal stories offering intimate views into the lives of families affected by rare disorders. The narratives reveal how parents -- mothers in particular -- play critical roles in obtaining a correct diagnosis and appropriate treatment for children with rare diseases. The stories...

Word of the Day
  • Remarkable; prodigious.
  • Audacious; gutsy.
  • Completely; extremely.
  • Audaciously; boldly.
  • Impressively great in size; enormous; extraordinary.
This word is probably from the dialectal 'boldacious,' a blend of 'bold' and 'audacious.'