Latest Schwannomatosis Stories
First-of-its-kind disease funding schemas provide a comprehensive view of neurofibromatosis research PHILADELPHIA, April 10, 2013 /PRNewswire/ -- The Intellectual Property & Science business of Thomson Reuters, the world's leading provider of intelligent information for businesses and professionals, today announced a partnership with the Children's Tumor Foundation (CTF), to further the understanding of neurofibromatosis (NF) research by creating schemas that visually...
Johns Hopkins experts are recommending early post-surgical assessment -- preferably within 24 hours -- for trouble chewing and swallowing food, or speaking normally, among patients who have had benign tumors removed from the base of the brain. Such early assessments, they say, may minimize complications associated with the sometimes hazelnut-sized tumors, called vestibular schwannomas. Damage can arise when the tumors themselves press on the nearby cranial nerves -- key to controlling the...
In the news release, Running the New York City Half Marathon in Hopes of Finding Treatments for Neurofibromatosis, issued 13-Mar-2012 by Children's Tumor Foundation over PR Newswire, the source should read "Children's Tumor Foundation" rather than "Children's Brain Tumor Foundation" as incorrectly transmitted by PR Newswire. The complete, corrected release follows: Running the New York City Half Marathon in Hopes of Finding Treatments for Neurofibromatosis NEW YORK, March 13,...
NEW YORK, March 13, 2012 /PRNewswire-USNewswire/ -- Imagine being told by a doctor, "Your child has a genetic disorder that will affect the rest of her life. There are few medical treatment options and there is no cure." (Logo: http://photos.prnewswire.com/prnh/20120117/MM37181LOGO) Sylvia Colon experienced just such a circumstance when her daughter, Chloe, was diagnosed with neurofibromatosis type 2 (NF2) at age 13. Neurofibromatosis (NF) causes tumors to grow along nerves...
NEW YORK, Feb. 13, 2012 /PRNewswire-USNewswire/ -- Putting the "hilarity" back in "charity," this past Saturday nearly 3,000 runners nationwide stripped down to their undies and braved the frigid February temps to raise money and awareness for a rather "undie-scussed" issue, neurofibromatosis (NF). Benefiting the Children's Tumor Foundation, this effort will mean more than $300,000 for medical research into treatments for NF, a genetic disorder that causes tumors to grow on nerves...
NEW YORK, Oct. 31, 2011 /PRNewswire/ -- The Children's Tumor Foundation, a non-profit organization dedicated to improving the health and well-being of millions of people living with neurofibromatosis (NF) and the leader in funding medical research to find treatments for the disorder, will host its 2011 Annual Benefit Dinner on Wednesday, November 2 in New York City to thank its supporters. This year the Children's Tumor Foundation will present the 2011 Children's Humanitarian Award to the...
Ten States Down, Derek Brown Prepares for the Publix Georgia Marathon in March Atlanta, GA (PRWEB) March 17, 2011 Derek Brown is set to win again as he takes on the Publix Georgia Marathon, his 13th marathon so far on behalf of his 19 year-old brother, Austin who lives with Neurofibromatosis (NF). Austin, who was diagnosed at age three is Derek's motivation to continue competing until he has finished a marathon in all 50 states. So far, he has completed thirteen marathons in eleven...
