Latest SCID Stories

NEW YORK, April 29, 2013 /PRNewswire-USNewswire/ -- Who would have ever thought that sequestration and budget battles would determine whether a precious newborn baby would survive? How is it possible that a "continuing resolution" could actually deprive a newborn baby of "continuing" his or her life? It is exactly what has happened to our innocent newborns, who are victimized by government officials that are dealing with partisan politics and divisiveness. To view the multimedia...

All Texas newborns will now be screened for immunodeficiency disorders at birth HOUSTON, Dec. 3, 2012 /PRNewswire-USNewswire/ -- Beginning in December 2012, all newborns in the state of Texas will be screened for Severe Combined Immunodeficiency Disorder (SCID) as part of the standard newborn screening panel which already screens for 28 additional disorders. In correlation with this new screening, Texas Children's Hospital announced a new Newborn Primary Immunodeficiency Disorder...

TOWSON, Md., Dec. 1, 2012 /PRNewswire/ -- The Texas Department of State Health Services (DSHS) will add Severe Combined Immunodeficiency (SCID) to the state's Newborn Screening Panel beginning December 1, 2012. The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Texas and the dedicated volunteers who have advocated for this cause. Screening for SCID increases the probability of early...

TOWSON, Md., Oct. 17, 2012 /PRNewswire/ -- The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, applauds the decision of the Iowa Department of Public Health to expand its newborn screening program to include screening for Severe Combined Immune Deficiency Disease (SCID), known as bubble boy disease. The Department of Public Health made the announcement on their website Wednesday, October 10, 2012. SCID has...

TOWSON, Md., Oct. 2, 2012 /PRNewswire/ -- The Florida Department of Health has added Severe Combined Immune Deficiency Disease (SCID), known as bubble boy disease, to the list of conditions that all newborns in the state are screened for at birth beginning October 1, 2012. SCID is a primary immunodeficiency disease where affected infants lack T lymphocytes or white blood cells that help fight infections from a wide array of viruses, bacteria and fungi, leaving these infants...

-Researchers enhance gene therapy approach for children with adenosine deaminase (ADA)-deficient severe combined immunodeficiency (SCID) using chemotherapy as conditioning regimen -For the first time, investigators test two different viral vectors to transport normal genes into the young patients' bone marrow stem cells and two different treatment plans in preparation for receiving gene therapy and compare outcomes WASHINGTON, Sept. 11, 2012 /PRNewswire-USNewswire/ -- By including...

NEW YORK, May 7, 2012 /PRNewswire/ -- Physicians from 17 Middle East countries will convene next month for the first Middle East Workshop on Primary Immunodeficiencies (PI). The three day meeting is being organized by the Jeffrey Modell Foundation (JMF), a global organization dedicated to PI research, physician education, patient support, public awareness, advocacy and newborn screening. There are 493 referral physicians at 194 diagnostic and research centers in the Jeffrey Modell...

NEW YORK, Feb. 1, 2012 /PRNewswire/ -- Frustrated with the slow pace of implementation of newborn screening for Severe Combined Immune Deficiency (SCID), Vicki and Fred Modell decided to coordinate and fund the effort themselves. Today, they announced a multi-million dollar commitment to screen every baby born in every state for this life threatening condition, often referred to as "bubble boy disease." To view the multimedia assets associated with this release, please click...

SPRINGFIELD, Ill. and TOWSON, Md., Feb. 8, 2011 /PRNewswire/ -- The Illinois Genetic and Metabolic Diseases Advisory Committee voted unanimously to recommend that the Department of Health screen all newborns for Severe Combined Immune Deficiency (SCID) - commonly known as bubble boy disease. The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Illinois for taking this momentous step. IDF...

JACKSONVILLE, Fla. and TOWSON, Md., Feb. 2, 2011 /PRNewswire/ -- The Florida Genetics and Newborn Screening Program Advisory Council voted unanimously to recommend that the Department of Health screen all newborns for Severe Combined Immune Deficiency (SCID) - commonly known as bubble boy disease. The Immune Deficiency Foundation (IDF), the national patient organization for persons with primary immunodeficiency diseases, commends the state of Florida for taking this momentous step. IDF...