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Last updated on April 17, 2014 at 14:33 EDT

Latest Scleroderma Research Foundation Stories

2013-12-10 08:31:37

Director of the Center for Neurogastroenterology at The Johns Hopkins University School of Medicine is the latest expert to participate in a free webinar series for scleroderma patients and caregivers. SAN FRANCISCO, Dec. 10, 2013 /PRNewswire-USNewswire/ -- Dr. Pankaj "Jay" Pasricha, Director of the Center for Neurogastroenterology and Professor of Medicine at The Johns Hopkins University School of Medicine will host a patient-focused webinar on Thursday, December 12, 2013 at 10...

2013-12-05 16:25:03

SAN FRANCISCO, Dec 5, 2013 /PRNewswire-USNewswire/ -- The Scleroderma Research Foundation today reported that researchers at The Johns Hopkins University have discovered that some cases of scleroderma are likely to have been initiated by cancer. In a landmark paper published online on December 5 in Science, researchers focusing on a select group of patients with both scleroderma and cancer, discovered that the patients' immune response to a mutated protein in their tumors resulted in...

2013-10-29 12:25:00

SAN FRANCISCO, Oct. 29, 2013 /PRNewswire-USNewswire/ -- Actor/Comedian/Director Bob Saget will host Cool Comedy - Hot Cuisine, the signature event of the Scleroderma Research Foundation (SRF) on Monday, November 4 at Carolines on Broadway. Saget, an SRF Board Member who lost his sister to scleroderma, will be joined in the fundraising effort by comedians Jim Gaffigan, John Oliver (The Daily Show) and other special guests. Saget's friend and co-star from the Full House days, John...

2013-10-09 16:23:35

SAN FRANCISCO, Oct. 9, 2013 /PRNewswire-USNewswire/ -- The Scleroderma Research Foundation today said that researchers at The Johns Hopkins University working in a novel mouse model of Stiff Skin Syndrome have made key discoveries that may have broad implications for future scleroderma therapy. In a report to be published online on October 10th in Nature, scientists show that integrin-modulating agents can arrest fibrosis in a model of scleroderma-like skin fibrosis and, more...

2013-09-13 12:26:01

The Scleroderma Research Foundation with support from Gilead Sciences, MedImmune and Novartis brings the nation's top experts directly to the patients via a free webinar series SAN FRANCISCO, Sept. 13, 2013 /PRNewswire-USNewswire/ -- Dr. Laura Hummers, Assistant Professor of Medicine and Co-Director of the Johns Hopkins Scleroderma Center, will host a patient-focused webinar on Tuesday, September 17, 2013 at 10 a.m. PDT. "What's New in the World of Scleroderma" will educate...

2013-08-14 12:27:16

Organization Honors Mary Blades' Service to the Scleroderma Community DANVERS, Mass., Aug. 14, 2013 /PRNewswire-USNewswire/ -- The Scleroderma Foundation recently honored a Missouri resident with its Lifetime Achievement Award. Mary Blades, of Springfield, has served as president of the Missouri Chapter for eight years. She also sits on the organization's National Board of Directors and its Advocacy Committee. Through the years, Blades has dedicated herself at both the local and...

2013-07-25 23:02:32

Extreme pogo athlete to kickoff Pogopalooza 10 in New York City with world record attempt for most consecutive bounces on a pogo stick to raise awareness for scleroderma. New York, New York (PRWEB) July 25, 2013 On Friday, July 26, 27-year-old extreme pogo athlete James Roumeliotis of Lynnfield, Massachusetts, will attempt to break the world record for most consecutive bounces on a pogo stick without rest in New York City’s Washington Square Park. His stunt will kick off Pogopalooza 10,...

2013-07-22 12:26:22

Life-Changing Opportunity for Individuals with Rare Autoimmune Condition DANVERS, Mass., July 22, 2013 /PRNewswire-USNewswire/ -- More than 500 people are expected in Atlanta Friday, July 26, through Sunday, July 28, for the Scleroderma Foundation's 15th Annual National Patient Education Conference. Patients, family members, caregivers, doctors and other health care professionals from the United States, Mexico, Canada, Europe and Australia will meet at the Hyatt Regency Atlanta for...

2013-07-10 08:28:49

SAN FRANCISCO, July 10, 2013 /PRNewswire-USNewswire/ -- America's non-profit funding leader in scleroderma research has announced two upcoming webinars providing patients and caregivers with expert information on the symptoms and management of scleroderma (systemic sclerosis)--part of a free webinar series provided by the Scleroderma Research Foundation (SRF) and made possible with support from Gilead Sciences, MedImmune and Novartis. The SRF webinars will feature Drs. Lorinda Chung...

2013-05-16 12:30:22

A Free Webinar provided by the Scleroderma Research Foundation with support from Gilead Sciences, MedImmune and Novartis SAN FRANCISCO, May 16, 2013 /PRNewswire-USNewswire/ -- The nonprofit Scleroderma Research Foundation (SRF) will welcome Drs. Monique Hinchcliff, Lorinda Chung and Laura Hummers as featured speakers for the popular webinar series helping patients and caregivers to better understand the disease as well as what is being done to find a cure and what new treatments are...