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Last updated on April 20, 2014 at 8:28 EDT

Latest Scleroderma Stories

2013-08-14 12:27:16

Organization Honors Mary Blades' Service to the Scleroderma Community DANVERS, Mass., Aug. 14, 2013 /PRNewswire-USNewswire/ -- The Scleroderma Foundation recently honored a Missouri resident with its Lifetime Achievement Award. Mary Blades, of Springfield, has served as president of the Missouri Chapter for eight years. She also sits on the organization's National Board of Directors and its Advocacy Committee. Through the years, Blades has dedicated herself at both the local and...

2013-08-13 12:26:53

Annual Awards Recognize Dedication and Commitment to Rare Disease Population DANVERS, Mass., Aug. 13, 2013 /PRNewswire-USNewswire/ -- The Scleroderma Foundation named Sergio A. Jimenez, M.D., its 2013 Doctor of the Year. The award recognizes a skilled physician or researcher for his or her involvement within the Foundation, and for helping provide guidance and support to the organization's patient population. Dr. Jimenez has devoted nearly four decades to the treatment of patients with...

2013-07-25 23:02:32

Extreme pogo athlete to kickoff Pogopalooza 10 in New York City with world record attempt for most consecutive bounces on a pogo stick to raise awareness for scleroderma. New York, New York (PRWEB) July 25, 2013 On Friday, July 26, 27-year-old extreme pogo athlete James Roumeliotis of Lynnfield, Massachusetts, will attempt to break the world record for most consecutive bounces on a pogo stick without rest in New York City’s Washington Square Park. His stunt will kick off Pogopalooza 10,...

2013-07-22 12:26:22

Life-Changing Opportunity for Individuals with Rare Autoimmune Condition DANVERS, Mass., July 22, 2013 /PRNewswire-USNewswire/ -- More than 500 people are expected in Atlanta Friday, July 26, through Sunday, July 28, for the Scleroderma Foundation's 15th Annual National Patient Education Conference. Patients, family members, caregivers, doctors and other health care professionals from the United States, Mexico, Canada, Europe and Australia will meet at the Hyatt Regency Atlanta for...

2013-07-10 08:28:49

SAN FRANCISCO, July 10, 2013 /PRNewswire-USNewswire/ -- America's non-profit funding leader in scleroderma research has announced two upcoming webinars providing patients and caregivers with expert information on the symptoms and management of scleroderma (systemic sclerosis)--part of a free webinar series provided by the Scleroderma Research Foundation (SRF) and made possible with support from Gilead Sciences, MedImmune and Novartis. The SRF webinars will feature Drs. Lorinda Chung...

2013-06-24 16:27:05

Global Observances and Outreach Bring Attention to Complex, Debilitating Autoimmune Disease TOURNAI, Belgium, HAMILTON, Ontario, and DANVERS, Mass., June 24, 2013 /PRNewswire-USNewswire/ -- An international consortium of patient advocacy groups dealing with the autoimmune disease scleroderma, also called systemic sclerosis, will mark World Scleroderma Day on Saturday, June 29. Events and observances around the world will be held and are designed to foster greater awareness and...

2013-05-16 12:30:22

A Free Webinar provided by the Scleroderma Research Foundation with support from Gilead Sciences, MedImmune and Novartis SAN FRANCISCO, May 16, 2013 /PRNewswire-USNewswire/ -- The nonprofit Scleroderma Research Foundation (SRF) will welcome Drs. Monique Hinchcliff, Lorinda Chung and Laura Hummers as featured speakers for the popular webinar series helping patients and caregivers to better understand the disease as well as what is being done to find a cure and what new treatments are...

2013-04-17 16:26:01

BINGHAMTON, N.Y., April 17, 2013 /PRNewswire-USNewswire/ -- In the Northeast, an early jump into spring is preferred. For many with scleroderma, this time of year brings some welcome relief from the cold, which makes this disease even harder to cope with. The Scleroderma Foundation and its Tri-State Chapter are taking a different kind of early jump; an early jump into our June Scleroderma Awareness Month efforts. A special program is allowing us to get our message out to millions through a...

2013-02-02 23:00:29

Febe's family was told by doctors there was nothing they could do and to take her home to die, says her emotional son as he relates her story. That all changed when they met Dr. Sylvia Abblitt at World Stem Cells Clinic and received a stem cell treatment. Lutz, FL (PRWEB) February 02, 2013 Stem Cell Treatments for Scleroderma patients at World Stem Cells Clinic http://worldstemcells.com/ have had great success in providing improvements in breathing, swallowing, energy and renewal of soft...

2012-12-12 16:23:26

Actress Leads Awareness Activities for Coalition for Pulmonary Fibrosis' Daughters of PF program HOLLYWOOD, Calif., Dec. 12, 2012 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis announced today motion picture and television actress Rose McGowan will be a guest on Friday, December 14(th) on CBS TV's The Doctors. She will share her tragic personal story of how she watched her father suffer and die from the incurable lung disease, Pulmonary Fibrosis (PF) and help raise...