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Latest Scleroderma Stories

2010-07-29 12:38:00

Fleet of More than 30 Trucks Make Trips Daily Cross Country Potentially Reaching Millions, Jumbotron Ad on Busy CA Freeway Reaches More than 130,000 People Daily SAN JOSE, Calif., July 29 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) announced today a nationwide advertising campaign to spread the word about Pulmonary Fibrosis (PF) is underway in an untraditional setting - on the nation's interstates. Together, a billboard ad and truck ads are part of a nationwide...

2010-06-21 08:00:00

DALLAS, June 21 /PRNewswire-USNewswire/ -- The Scleroderma Foundation's Texas Bluebonnet Chapter is pleased to announce its third annual Dallas/Fort Worth "Stepping Out to Cure Scleroderma" walk-a-thon to benefit the programs and services of the chapter and to help fund medical research aimed at finding the cause and cure for scleroderma, a little-known but devastating autoimmune disease. The walk will begin at 8:30 a.m. on Saturday, June 26, 2010 at the Collin Creek Mall in Plano, TX, and...

2010-06-17 10:00:00

SAN JOSE, Calif., June 17 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) said today stories appearing this week on The TODAY Show and CBS News' website, www.cbs.com, provided the first national major media coverage of pulmonary fibrosis (PF) in history. That coverage, viewed by more than five million people, is helping to drive a new level of awareness for this little known disease and is providing hope for thousands suffering from the disease. Both the NBC's TODAY...

2010-06-15 00:25:19

There is a new path to defeat systemic sclerosis, also called scleroderma because of the hardening of the skin of the patients (from Greek skleros, "hard", and derma, "skin"). This path involves the B-cell of the immune system, so far only considered "innocent spectators," as Catholic University rheumatologist Gianfranco Ferraccioli, among the authors of the important research, puts it. Also Silvia Bosello, Maria De Santis, Gina Lama, Cristina Spanò, Cristiana Angelucci,...

2010-06-14 12:59:00

Show to Air Tuesday, June 15th SAN JOSE, Calif., June 14 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) announced today one of the first major national media coverage opportunities for the CPF and Pulmonary Fibrosis (PF). NBC's TODAY Show will focus on the disease in an interview with California patient Bob O'Rourke, who suffers from the disease and will die from it unless he receives a lung transplant in time. The show will air tomorrow, June 15th, on NBC. Please...

2010-06-02 08:00:00

DANVERS, Mass., June 2, /PRNewswire-USNewswire/ -- Dedicated to serving the needs of those whose lives have been impacted by scleroderma through its three-fold mission of support, education and research, the Scleroderma Foundation is proud to announce June as "Scleroderma Awareness Month." During June Scleroderma Awareness Month, the Foundation focuses on efforts to advance awareness about scleroderma to a variety of audiences on local and national levels, including medical professionals,...

2010-05-04 18:01:00

Decision Marks Delay in Potential First Treatment for Deadly Disease SAN JOSE, Calif., May 4 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF), representing tens of thousands of patients, is responding to the news that the FDA chose to ask for further study of Pirfenidone, which will delay potential approval of the first drug in the treatment of Pulmonary Fibrosis (PF), a lethal lung disease that is irreversible, progressive and deadly in an average of three years. On...

2010-05-04 11:00:00

DANVERS, Mass., May 4 /PRNewswire-USNewswire/ -- The Scleroderma Foundation announces an open call for proposals for its 2011 Research Grant Program. The Scleroderma Foundation fosters the development of innovative, high-quality research by new and established investigators in fields related to systemic sclerosis (SSc, scleroderma). To accomplish this goal, two distinct research grants are being offered, "Scleroderma Foundation New Investigator Grant," and the "Scleroderma Foundation...

2010-04-22 05:05:00

SOUTH SAN FRANCISCO, Calif. and MEMPHIS, Tenn., April 22 /PRNewswire/ -- Actelion Pharmaceuticals US, Inc., today announced that it has selected Accredo Health Group, Inc., a wholly-owned subsidiary of Medco Health Solutions, Inc., to serve as the sole specialty pharmacy provider of Epoprostenol for Injection, the only epoprostenol formulated to provide up to 24-hour stability at room temperature without the use of ice packs. This improved formulation of Epoprostenol for Injection is...

2010-04-22 05:00:00

SOUTH SAN FRANCISCO, Calif., April 22 /PRNewswire/ -- Actelion Pharmaceuticals US, Inc. today announced the commercial availability of Epoprostenol for Injection, an improved formulation of epoprostenol that is stable at room temperature, for the treatment of primary pulmonary hypertension and pulmonary hypertension associated with scleroderma spectrum of disease in NYHA Class III and Class IV patients. Simultaneously, the company has launched the PROSPECT registry, a multicenter,...


Word of the Day
pungle
  • To take pains; labor assiduously with little progress.
This word comes from the Spanish 'pongale,' put it.
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