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Last updated on April 19, 2014 at 5:20 EDT

Latest spina bifida Stories

2011-02-10 13:40:23

The Children's Hospital of Philadelphia is one of three centers in newly released landmark study Performing delicate surgery in the womb, months before birth, can substantially improve outcomes for children with a common, disabling birth defect of the spine. Experts at The Children's Hospital of Philadelphia (CHOP) co-led a new landmark study showing that fetal surgery for spina bifida greatly reduces the need to divert fluid from the brain, improves mobility and improves the chances that a...

2011-02-10 01:00:00

Thirty years ago, the first human fetal surgery was performed at the University of California, San Francisco. Now, a randomized controlled trial has proven definitively that fetal surgery can help certain patients before birth. Babies who undergo an operation to repair the birth defect spina bifida while still in the womb develop better and experience fewer neurologic complications than babies who have corrective surgery after birth, according to findings from a major multicenter trial led by...

2011-01-03 07:00:00

WHITE PLAINS, N.Y., Jan. 3, 2011 /PRNewswire/ -- This January, as part of National Birth Defects Prevention Month, the Grain Foods Foundation has partnered with the March of Dimes to remind all women of child-bearing age of the important role folic acid plays in preventing birth defects. Daily consumption of the B vitamin folic acid, beginning before pregnancy, is crucial as neural tube defects, birth defects of the brain and spine such as spina bifida, can occur in the early weeks...

2010-10-19 07:37:17

Ryma, a petite 5-year-old girl from Algeria, is the newest arrival at The LightHouse, a ministry of ISOH/IMPACT, one of Ohio's premier disaster relief and humanitarian aid organizations. Diagnosed with lipomyelomeningocele, a form of Spina Bifida, Ryma has a mass located under the skin on her back. As a result of the pressure put on her spinal column by the mass, Ryma lives with reduced neurological function and mobility. Perrysburg, OH (Vocus) October 19, 2010 Ryma, a petite 5-year-old...

2010-10-04 16:53:50

An increasing number of obese adolescents, particularly females, are undergoing gastric bypass surgery. Yet a case study presented Sunday, Oct. 3, at the American Academy of Pediatrics (AAP) National Conference and Exhibition in San Francisco, highlights the possible link between gastric bypass surgery in adolescent girls and an increased risk for neural tube defects, which can lead to varying degrees of disability such as paralysis and mental retardation due to damage to the nervous system,...

2010-10-01 06:00:00

ORLANDO, Fla., Oct. 1 /PRNewswire-USNewswire/ -- United Spinal Association will announce today the acquisition of New Mobility magazine, leveraging capabilities of both organizations to improve the lives of people with disabilities nationwide. The organizations will retain their individual names and United Spinal Association will continue the publication of New Mobility uninterrupted. United Spinal Association, a national nonprofit and pioneer in the disability rights movement with more...

2010-07-22 05:00:00

PHILADELPHIA, July 22 /PRNewswire-USNewswire/ -- Children and young adults with disabilities between the ages of 4 and 21 can register at www.UnitedSpinal.org/kss for the 6th annual Kids Sports Spectacular at Wachovia Center in Philadelphia, PA, to be held on Saturday, August 7th from 10 AM to 3 PM. The Kids Sports Spectacular is a free event that features instruction and educational clinics on wheelchair tennis, softball, basketball, power hockey, hand cycling and strength training. A...

2010-05-31 13:04:07

An international group of researchers has identified the genetic cause of an inherited condition that causes severe foetal abnormalities. The work, co-led by geneticists at the University of Leeds, together with colleagues from institutes and universities in Paris, Rome and San Diego, should allow couples at risk of conceiving babies with the profoundly disabling Meckel-Gruber and Joubert syndromes to be identified beforehand through genetic screening. Their findings, which show how the...

2010-04-22 05:00:00

NEW YORK, April 22 /PRNewswire-USNewswire/ -- Carol Khoury was recently hired as the Chief Financial Officer of United Spinal Association, a national nonprofit organization dedicated to improving the quality of life for people with disabilities for more than sixty years. Carol has over 25 years of financial experience and demonstrated leadership and management skills for diverse organizations, including a Big 4 accounting firm, a not-for-profit, and a complex governmental organization....

2010-04-05 05:00:00

NEW YORK, April 5 /PRNewswire-USNewswire/ -- United Spinal Association has developed a free online training program designed to save the lives of individuals with disabilities and mobility impairments during fire emergencies. United Spinal Association developed the fire safety training program that can be downloaded and shared with others with two practical goals in mind: To review the features of building code life/fire safety requirements for newly constructed buildings and facilities...