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Last updated on April 17, 2014 at 14:35 EDT

Latest Systemic scleroderma Stories

2010-06-21 08:00:00

DALLAS, June 21 /PRNewswire-USNewswire/ -- The Scleroderma Foundation's Texas Bluebonnet Chapter is pleased to announce its third annual Dallas/Fort Worth "Stepping Out to Cure Scleroderma" walk-a-thon to benefit the programs and services of the chapter and to help fund medical research aimed at finding the cause and cure for scleroderma, a little-known but devastating autoimmune disease. The walk will begin at 8:30 a.m. on Saturday, June 26, 2010 at the Collin Creek Mall in Plano, TX, and...

2010-06-15 00:25:19

There is a new path to defeat systemic sclerosis, also called scleroderma because of the hardening of the skin of the patients (from Greek skleros, "hard", and derma, "skin"). This path involves the B-cell of the immune system, so far only considered "innocent spectators," as Catholic University rheumatologist Gianfranco Ferraccioli, among the authors of the important research, puts it. Also Silvia Bosello, Maria De Santis, Gina Lama, Cristina Spanò, Cristiana Angelucci,...

2010-06-02 08:00:00

DANVERS, Mass., June 2, /PRNewswire-USNewswire/ -- Dedicated to serving the needs of those whose lives have been impacted by scleroderma through its three-fold mission of support, education and research, the Scleroderma Foundation is proud to announce June as "Scleroderma Awareness Month." During June Scleroderma Awareness Month, the Foundation focuses on efforts to advance awareness about scleroderma to a variety of audiences on local and national levels, including medical professionals,...

2010-05-04 11:00:00

DANVERS, Mass., May 4 /PRNewswire-USNewswire/ -- The Scleroderma Foundation announces an open call for proposals for its 2011 Research Grant Program. The Scleroderma Foundation fosters the development of innovative, high-quality research by new and established investigators in fields related to systemic sclerosis (SSc, scleroderma). To accomplish this goal, two distinct research grants are being offered, "Scleroderma Foundation New Investigator Grant," and the "Scleroderma Foundation...

2010-03-20 13:22:38

By studying the genetics of a rare inherited disorder called stiff skin syndrome, researchers at the Johns Hopkins University School of Medicine have learned more about scleroderma, a condition affecting about one in 5,000 people that leads to hardening of the skin as well as other debilitating and often life-threatening problems. The findings, which appear this week in Science Translational Medicine, open doors to testing new treatments. "Scleroderma is a common and often devastating...

2010-02-10 09:00:00

SAN DIEGO, Feb. 10 /PRNewswire/ -- Amira Pharmaceuticals, Inc. announced today that their collaborators, Andrew Tager, M.D. and Flavia V. Castelino, M.D. of Massachusetts General Hospital, Harvard Medical School, will present a preclinical proof-of-concept study which demonstrates that the bioactive lipid lysophosphatidic acid (LPA), through its high affinity LPA1 receptor, is an important mediator of fibrogenesis in the bleomycin mouse model of scleroderma. Data will be presented as part...

2010-01-28 11:46:08

Largest US study to date finds mortality outcomes improving A recent study by researchers from the Cleveland Clinic found that the overall mortality rate in the U.S. for all pediatric patients with rheumatic diseases was not worse than the age and sex-adjusted population. Furthermore, mortality rates were significantly lower than reported in previous studies of rheumatic diseases and conditions that are associated with increased mortality. Details of the study appear in the February issue of...

2009-11-16 08:00:00

DANVERS, Mass., Nov. 16 /PRNewswire-USNewswire/ -- For an estimated 5-10 percent of the population, the wintertime blues are more than a state of mind. Cold weather triggers a painful and sometimes debilitating disorder for millions of Americans who suffer from Raynaud's disease (also known as Raynaud's syndrome or phenomenon). Raynaud's is an autoimmune disorder in which spasms in the blood vessels can interrupt blood flow to the fingers, toes, nose and ears. Exposure to cold...

2009-10-30 07:34:04

At its most benign, the autoimmune disease scleroderma can discolor parts of the skin of its sufferers. At its most pernicious, it can thicken and harden their skin, their blood vessels, and their internal organs before, in many cases, killing them. In all its forms, scleroderma gives Dartmouth geneticist Michael Whitfield, his graduate students, and his postdoctoral researchers a sense of urgency in their search for the triggers of the chronic condition. In a study that the Journal of...

2009-10-22 13:50:00

Honoring Congresswoman Linda T. Sanchez (CA) and Actress Kellie Martin Gala to raise funds for the Scleroderma Foundation, Southern California Chapter LOS ANGELES, Oct. 22 /PRNewswire-USNewswire/ -- The 13th Annual "Key to a Cure" Gala takes place Saturday, November 7, at the Manhattan Beach Marriott. Proceeds from the event will benefit the Scleroderma Foundation, Southern California Chapter. (Photo: http://www.newscom.com/cgi-bin/prnh/20091022/DC97406) California Congresswoman...