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Latest Usual interstitial pneumonia Stories

2010-03-10 14:49:00

PF Patients Plead with FDA Advisory Panel to Hear Their Voices, Understand Their Plight SILVER SPRING, Md., March 10 /PRNewswire-USNewswire/ -- The Coalition for Pulmonary Fibrosis (CPF) and the Pulmonary Fibrosis Foundation (PFF) are applauding the efforts of Pulmonary Fibrosis (PF) patients and family members for their work to convey to the FDA and an FDA Advisory Committee the sense of urgency and desperation regarding the disease and the lack of treatment options. Their words were...

2009-09-04 14:05:00

His Longevity with the Deadly Disease Inspires Thousands of Dying Patients SAN JOSE, Calif., Sept. 4 /PRNewswire-USNewswire/ -- When Jerry Lewis takes the stage again on Labor Day 2009 for the Muscular Dystrophy Association Telethon, thousands of people who suffer from the same lung disease as he will be watching - and not just to hear the funny things he'll say. They'll be looking for inspiration from the funny man who suffers from a not-so-funny and little known fatal lung disease....

2009-05-20 09:35:18

U.S. medical researchers say they have demonstrated the effectiveness and safety of a new drug to treat idiopathic pulmonary fibrosis. Researchers said the drug, pirfenidone, might become the first FDA-approved medicine to treat the condition. In a Phase III clinical study, investigators said they discovered the oral anti-fibrotic and anti-inflammatory agent slows the deterioration of lung capacity in idiopathic pulmonary fibrosis patients. Two multinational, randomized, double-blind,...

2008-12-04 08:30:00

SAN JOSE, Calif., Dec. 4 /PRNewswire-USNewswire/ -- Music and civil rights icon Odetta succumbed December 2 as a result of multiple illnesses. One of them was pulmonary fibrosis (PF), an illness that relentlessly fills the lungs with scar tissue and suffocates its victims, and is one of the deadliest yet least well known diseases in the country. Despite being diagnosed with PF two years ago, a diagnosis that was essentially a death sentence, Odetta went on to perform extraordinary concerts...

2008-10-09 12:00:39

ROCKVILLE, Md., Oct. 9 /PRNewswire-USNewswire/ -- Dr. Jerome Sandler and his wife, Froma, are still dealing with the sadness of losing their beautiful daughter last year to a disease of unknown origin that has no cure. Lisa died of pulmonary fibrosis (PF), which claims 40,000 lives each year. The Sandlers have turned their grief into action as they host the first Lisa Sandler Spaeth Memorial Golf Tournament on October 14th at Woodmont Country Club in Rockville to raise funds to help the...

2008-10-09 12:00:38

To: NATIONAL EDITORS Contact: Teresa Barnes of Coalition for Pulmonary Fibrosis, +1- 303-521-4080, tbarnes@coalitionforpf.org Congressman to Present at 3rdAnnual Breathing Is Glorious! (B.I.G.) Ball at Renaissance Chicago Hotel October 11th CHICAGO, Oct. 9 /PRNewswire-USNewswire/ -- Congressman Mark Kirk knows firsthand how relentless pulmonary fibrosis is on its victims. His father, Frank Kirk, of Kenilworth, Ill., died from the disease in February. Rep. Kirk will deliver the keynote...

2008-09-18 18:00:19

To: POLITICAL EDITORS Contact: Teresa Barnes of CPF, +1-303-521-4080 cell, tbarnes@coalitionforpf.org Efforts Double Co-Sponsors of Bill SAN JOSE, Calif., Sept. 18 /PRNewswire-USNewswire/ -- Coalition for Pulmonary Fibrosis patient advocates asked Members of Congress for help on a landmark bill that could save their lives and lives of thousands of other Americans. Some of the advocates, including former Utah Governor Olene Walker, suffer from an untreatable and terminal lung disease...

2008-09-11 00:00:08

By chris peregine They are often seen as poor relations in the world of medical research. Lung disease may be common enough in most people's perception, but experts in the field know a lot more can be done to get to grips with a particular group of conditions within that category. The conditions come under the umbrella of pulmonary fibrosis, which causes scarring of the lungs, and there are around 200 of them. And even though it is still not known what causes these diseases, there is...

2008-09-04 18:00:06

To: POLITICAL EDITORS Contact: Teresa Barnes of the Coalition for Pulmonary Fibrosis, +1-303-521-4080, tbarnes@coalitionforpf.org Awareness Week is September 7-13 SAN JOSE, Calif., Sept. 4 /PRNewswire-USNewswire/ -- Olene Walker is no stranger to Capitol Hill. The former governor of Utah (2003- 2005), suffers from an untreatable and terminal lung disease called idiopathic pulmonary fibrosis (IPF), also known as pulmonary fibrosis (PF). She will meet with Members of Congress, many of...

2008-07-23 09:01:20

To: NATIONAL EDITORS Contact: Teresa Barnes of the Coalition for Pulmonary Fibrosis, +1-303-521-4080, tbarnes@coalitionforpf.org Landmark Bill Would Create National Patient Registry, Increase Public Awareness of Deadly Lung Disease WASHINGTON, July 23/PRNewswire-USNewswire/ -- Not much is known about Pulmonary Fibrosis (PF), a progressive and ultimately fatal lung disease that claims the lives of 40,000 Americans each year and kills an estimated two-thirds of patients within their...