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Last updated on April 18, 2014 at 17:24 EDT

Latest VHL Family Alliance Stories

2013-09-27 08:26:17

BOSTON, Sept. 27, 2013 /PRNewswire/ -- As the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, the VHL Family Alliance is pleased to unveil an updated name and appearance. The new name, VHL Alliance, along with an updated logo reflects the organization's commitment to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL. (Logo: http://photos.prnewswire.com/prnh/20130927/PH87605LOGO ) While the VHL...

2012-11-01 07:32:26

BOSTON, Nov. 1, 2012 /PRNewswire/ -- The von Hippel-Lindau Family Alliance (VHLFA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to honor Joyce W. Graff, Founding Executive Director of the VHL Family Alliance and William G. Kaelin, Jr, MD of Dana Farber Cancer Institute, Brigham and Women's Hospital, and Harvard School of Medicine. The Fundraising Dinner will take place on November 19(th) in Brookline, MA...

2012-08-20 02:30:01

BOSTON, Aug. 20, 2012 /PRNewswire/ -- The von Hippel-Lindau Family Alliance (VHLFA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to announce the launch of its new, user-friendly website, http://www.vhl.org. The goal of the new site is to provide visitors with easily accessible information regarding research, treatment, and support. In upholding VHLFA's mission to improve diagnosis, treatment, and quality of life for individuals and families...