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Latest Von Hippel – Lindau disease Stories

2013-09-27 08:26:17

BOSTON, Sept. 27, 2013 /PRNewswire/ -- As the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, the VHL Family Alliance is pleased to unveil an updated name and appearance. The new name, VHL Alliance, along with an updated logo reflects the organization's commitment to research, education, and support to improve diagnosis, treatment, and quality of life for those affected by VHL. (Logo: http://photos.prnewswire.com/prnh/20130927/PH87605LOGO ) While the VHL...

2013-09-10 08:30:56

BOSTON, Sept. 10, 2013 /PRNewswire/ -- The von Hippel-Lindau Alliance (VHLA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to honor Dr. James Edward Montie, Valassis Professor of Urology, Former Chair of the Department of Urology, and Senior Urologist of the University of Michigan Health Systems, and Fran Mott, long-term Chapter Leader of the VHL Alliance. The Fundraising Dinner will take place on September 20(th) in Ann Arbor, MI...

2012-11-01 07:32:26

BOSTON, Nov. 1, 2012 /PRNewswire/ -- The von Hippel-Lindau Family Alliance (VHLFA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to honor Joyce W. Graff, Founding Executive Director of the VHL Family Alliance and William G. Kaelin, Jr, MD of Dana Farber Cancer Institute, Brigham and Women's Hospital, and Harvard School of Medicine. The Fundraising Dinner will take place on November 19(th) in Brookline, MA...

2012-08-20 02:30:01

BOSTON, Aug. 20, 2012 /PRNewswire/ -- The von Hippel-Lindau Family Alliance (VHLFA), the leading resource for von Hippel-Lindau (VHL) and related tumor conditions, is pleased to announce the launch of its new, user-friendly website, http://www.vhl.org. The goal of the new site is to provide visitors with easily accessible information regarding research, treatment, and support. In upholding VHLFA's mission to improve diagnosis, treatment, and quality of life for individuals and families...

2011-11-22 07:05:00

BOSTON, Nov. 22, 2011 /PRNewswire/ -- On Thursday, November 10, 2011, Grey's Anatomy character "Henry Burton" played by actor Scott Foley died from complications from von Hippel-Lindau (VHL). Foley's character introduced the rare genetic disease to mainstream media and now it is our task to continue educating the world about VHL and one day find a cure. VHL is a genetic disease which causes excessive growth of blood vessels which cause abnormal growth of tumorous tissues in multiple areas in...

2010-12-13 07:30:00

BOSTON, Dec. 13, 2010 /PRNewswire/ -- The second episode in a three-part series on Grey's Anatomy features a patient with von Hippel-Lindau disease (VHL). The next new episode in the show is expected to air on January 6. The first episode, "Adrift and at Peace," aired Dec. 2 (http://tinyurl.com/vhlstory1). VHL is a rare disease, a genetic cancer syndrome that causes a series of tumors in many different parts of the body. It is hard to diagnose, but getting a diagnosis is not the end of...

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2007-04-05 15:00:00

By MARILYNN MARCHIONE The most infamous feud in American folklore, the long-running battle between the Hatfields and McCoys, may be partly explained by a rare, inherited disease that can lead to hair-trigger rage and violent outbursts. Dozens of McCoy descendants apparently have the disease, which causes high blood pressure, racing hearts, severe headaches and too much adrenaline and other "fight or flight" stress hormones. No one blames the whole feud on this, but doctors say it could...