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Last updated on April 21, 2014 at 9:29 EDT

Latest World Federation of Hemophilia Stories

2014-04-17 08:28:45

- Three-year commitment of up to 20 million units per year of blood clotting medicines to treat hemophilia patients in developing countries BARCELONA, Spain, April 17, 2014 /PRNewswire/ -- Grifols, S.A. (MCE: GRF, MCE: GRF.P and NASDAQ: GRFS) today announced that it will donate up to 20 million units of coagulation therapies in each of the next three (3) years to the World Federation of Hemophilia (WFH). Grifols has been a proud supporter of the WFH and its noble efforts for nearly a...

2014-04-17 08:28:23

Donated coagulation factor supports WFH Global Alliance for Progress program KING OF PRUSSIA, Pa., April 17, 2014 /PRNewswire/ -- CSL Behring announced today that the company will continue its ongoing commitment to the global coagulation disorders community with a donation of product to the World Federation of Hemophilia (WFH). The donation, provided in connection with World Hemophilia Day on April 17, supports WFH's Global Alliance for Progress (GAP) program aimed at improving the...

2014-04-17 08:22:44

Inspirational video is launched on World Hemophilia Day to tell the story of one Canadian's triumph over adversity TORONTO, April 17, 2014 /CNW/ - Attitude makes you a hero; that's why John Schmitke, Vice President and Chairman of the Youth Committee at the Canadian Hemophilia Society, Manitoba Chapter, is working to empower and inspire those with hemophilia by sharing his own positive approach to living with this blood disorder. On World Hemophilia Day (April 17, 2014), John...

2014-04-16 08:32:37

6.9 million people have a bleeding disorder. 75 percent of them don't know it. MONTREAL, April 16, 2014 /PRNewswire/ -- Every year on April 17, World Hemophilia Day is observed around the world to increase awareness of hemophilia and other inherited bleeding disorders. In 2014, World Hemophilia Day's theme will encourage the younger generation of the global bleeding disorders community to "Speak out. Create change." "World Hemophilia Day is part of our critical effort to aid in...

2014-03-24 08:28:01

The Approval of ALPROLIX is First Significant Advance in Hemophilia B Treatment in More Than 17 Years CAMBRIDGE, MA, March 24, 2014 /CNW/ - Biogen Idec (NASDAQ: BIIB) has announced that Health Canada approved ALPROLIX((TM) )[Coagulation Factor IX (Recombinant), Fc Fusion Protein], for the control and prevention of bleeding episodes and routine prophylaxis in adults, and children aged 12 and older, with hemophilia B. ALPROLIX is the first approved long-acting hemophilia B therapy and...

2013-11-13 12:27:00

DEERFIELD, Ill., Nov. 13, 2013 /PRNewswire/ -- Baxter International Inc. today announced it has completed enrollment in its Phase III clinical trial of BAX 855, an investigational extended half-life, recombinant factor VIII (rFVIII) treatment for hemophilia A. The ongoing trial is aimed at assessing the efficacy of the compound in reducing annualized bleed rates (ABR) in both prophylaxis and on-demand treatment schedules, and will also evaluate its safety and pharmacokinetic profile....

2013-09-26 12:29:17

MONTREAL, Sept. 26, 2013 /PRNewswire/ - In what's being hailed as a world first, precious proteins left over from the manufacture of plasma products from Canadian blood donors are being turned into life- and limb-saving treatments for thousands of people living with hemophilia in developing countries. A lifelong inherited bleeding disorder, hemophilia affects about 1 in 10,000 people worldwide. Close to seventy-five percent of them receive little or no treatment. Hemophilia is...

2013-06-25 08:29:10

MONTREAL, June 25, 2013 /PRNewswire/ - For 50 years, the World Federation of Hemophilia (WFH) has provided global leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. Fifty years ago, on June 25, 1963, the WFH held its first meeting in Copenhagen, Denmark. Working with leaders from a group of national patient associations, Frank Schnabel, WFH...

2013-04-16 12:27:52

MONTREAL, April 16, 2013 /PRNewswire/ -- The global bleeding disorders community will come together on April 17 to mark World Hemophilia Day. This event takes on a special significance as it coincides with the 50(th) anniversary of the World Federation of Hemophilia (WFH). To commemorate its 50(th) anniversary, the WFH has launched a hemophilia awareness video entitled The Journey Begins. It explores the origins of the WFH and the inspired role that Frank Schnabel played in bringing...

2013-04-03 08:27:56

CSL Behring initiates first "installment" of renewed 3-year commitment to WFH to donate coagulation factor to the WFH Global Alliance for Progress program KING OF PRUSSIA, Pa., April 3, 2013 /PRNewswire/ -- As part of its ongoing commitment to the global coagulation disorders community, CSL Behring will again donate factor product to the World Federation of Hemophilia (WFH) in connection with World Hemophilia Day this month. The medicine will be used in treating patients in...